Danh’s Remarkable Change

Eight-year-old Danh has cerebral palsy and lives in a care center in Vietnam. He spent most days lying in his crib and would remain laying down even when he ate — a position that, unbeknownst to his caregivers, caused him to choke on his food. But now, Danh sits up in his wheelchair to eat and loves engaging with the other children.

Danh* was born in June 2007 and was abandoned when he was an infant. He is now enrolled in care in the House of Love in Cam Ranh, Khanh Hoa. He has cerebral palsy and was diagnosed with hydrocephalus, for which he received surgery to drain the excess accumulation of cerebrospinal fluid (CSF) from his brain. However, his brain was affected by the hydrocephalus and resulted in stiffness and some brain damage. Despite the fact that Danh received good care and attention from the nuns at his care center, some of his specialized needs were not met due to his caregivers’ lack of knowledge and skills in caring for children with cerebral palsy. While in care, the nuns focused mostly on providing him with proper diet, medical care when he gets sick, and good hygiene. As he got older, Danh spent most of his time lying in his crib and being in a room by himself. Danh could not move, sit up or walk by himself. He ate in a laying position and depended mostly on his caretakers to meet his daily needs. The caretakers mostly showed up and interacted with him shortly during feeding or bathing time or to change his diaper. The only means of entertainment for him was watching TV. He cried when the TV was turned off and felt happy when it was on.

DanhDanh’s life changed remarkably in November 2015 when his caregivers received the ONP training to teach healthy, safe feeding for children without families organized by Holt International and the SPOON Foundation. Right after the training completed, the nuns ordered a wheelchair for Danh and some supplies needed to provide him with simple massage and physical exercise. Twice a day, Danh is given about one hour of massage and exercise using the big yoga ball. He is now fed while sitting up in his wheelchair. His caretakers share that Danh responded well and enjoyed the massage and exercise he received. He also got used to his new wheelchair after the first week. Now he can’t wait for his caretaker to come to his room every morning. He smiles happily when seeing the caretaker showing up in his room with his wheelchair because he knows that it is time to be brought outdoors with the other kids. While outdoors, he is around many other kids who stand around him, talking to him and making him laugh. Danh has been so happy and excited with these changes in his life. This is a simple change, but has made the Danh’s life significantly meaningful and full of excitement.

Hang Dam, MSW | Holt Vietnam Program

*Name changed

Binh Gains Needed Weight and Health

At 8 years old, Binh* weighed only 22 pounds. Her jaw was so tight from her cerebral palsy that she struggled to eat — causing her to become malnourished. When Holt’s nutrition program staff visited her care center, they recommended a high-protein milk formula and special exercises to relax her muscles. Just three months later, she has shown great improvement!

Binh_VietnamBinh lives in the Child Protection Center in the Ben Tre Province of Vietnam and is 8 years old. She was found abandoned as a baby and was born premature with a very low birth weight of just 3.7 pounds. She also has cerebral palsy and was severely malnourished when she first came to the center. When a professional nutritionist from Holt’s nutrition program visited Ben Tre Orphanage in October 2015, they recommended that Binh be sent to the hospital for special nutrition care and tube feeding. At the time, she was about 8 years old, weighed about 22 pounds and was 92 centimeters in height. She had a lot of difficulty eating due to CP and her jaw stiffness. She could only drink formula milk and could not eat any solid food.

In Vietnam, the hospital is limited in providing rehabilitation services for its patients. So it was not realistic for Binh to be able to receive specialized nutrition care in the hospital. For this reason, a special diet plan was recommended for her. Binh was prescribed a special milk formula that is high in protein to help her gain weight.

In the last three months, since she has received this recommended formula, Binh has shown great progress! Binh has gained more than two pounds and has grown one inch taller. Binh also now receives massage and exercise therapy every day before she is fed and is she is practicing sitting up in a wheelchair. It is reported by the medical staff in the care center that she gets sick less often and has significantly fewer respiratory issues. We all feel so glad for Binh!

As a final note, we — the care center staff in Vietnam — all feel so blessed by this training. We are now equipped with the invaluable knowledge to better care for the children with the support from nutritional specialists and Holt International. This is a big need in care centers across Vietnam, so Holt Vietnam plans to expand our knowledge and skills to serve even more children. We aim to continue to improve the quality of care for children in other orphanages and childcare centers in our country. Our strategy will include Holt’s nutrition program as a new long-term service component in Vietnam. We are glad to continue to work to make this enthusiastic plan happen.

Hang Dam, MSW | Holt Vietnam Program

*Name changed

Happy Birthday, Sasha!

IMG_2684

UPDATE: As of 3/16, Sasha has a family! 

Jennifer is a Holt ambassador and adoptive mom to children who have HIV. Here, she advocates for Sasha, a newly turned 11-year-old in China who is waiting for her permanent, loving family.

Several years ago we adopted a child with HIV from China. As my heart has fallen in love with our daughter and I have been educated about HIV, I have developed a deep desire to help more children living with this very manageable condition in China. A few months ago, a dream came true as I got the privilege of traveling to China as a Holt ambassador and got to meet a beautiful, talented and healthy group of children with HIV who are ready to be adopted!

Continue reading “Happy Birthday, Sasha!”

Chahel, Sabal and Ibha Saved Through Nutrition

DSC0709-980x653When Holt International’s Child Nutrition Program team traveled to India in spring 2015, they came back with reports of children whose lives and health had been transformed due to nutritional intervention.

Chahel* would not have survived. Born premature with a serious heart condition, he came into care shortly after birth at a rural branch site of our legacy partner outside the central India city of Pune. Transferred to Pune for better care, Chahel needed constant hemoglobin testing and regular blood transfusions. Fortunately, Holt had recently equipped the staff at his care center with a Hemocue machine and training to measure hemoglobin for iron-deficiency anemia. Chahel received the medical interventions he needed and today, he is able to stand with support and recently took his first few steps. This care center is now seeking a loving family for him.

Sabal* and Ibha* were frail and seriously underweight when they came into care. At 15 months, Sabal weighed just 18 pounds, while Ibha at nearly 2 months weighed under 5 pounds. This brother and sister were always tired and struggled to adjust to life in care at BSSK. Well fed at BSSK and fully treated for their health conditions — Ibha was living with HIV, and Sabal wore an eye patch over his infected left eye — their continued failure to thrive puzzled the caregivers and staff. When staff from Holt and our partner SPOON Foundation visited BSSK in February 2015, they helped to correct nutritional deficiencies in Ibha and Sabal. With adjustments to their diet, today they are full of joy and life and the staff feel confident they can find a loving adoptive family for them.

For children like Chahel, Sabal and Ibha, help by way of the ONP came just in time. As early nutrition is so crucial to development, meeting the nutritional needs of these vulnerable children can prevent life-threatening illnesses and even prevent permanent special needs.

*Names changed

Read more about the Holt International’s Child Nutrition Program here.

Participating in a Meal

Ajay
Ajay being fed by his caregiver.

When Holt’s nutrition initiatives coordinator, Aloura DiGiallonardo, visited one of Holt’s legacy partner care centers in India, she got to know 4-year-old Ajay — and she got to see him enjoy a meal for the first time.

Ajay* is a sweet young boy whose potential and personality were long unrealized. He lives in a care center in Pune, India and has cerebral palsy in addition to other physical and mental disabilities. He is almost 4 years old, but appears small and skinny for his age — a result of malnutrition. Ajay’s days are pretty uneventful: he lies in his crib and when he is fed, also while lying down, he is barely able to choke down his food.

But one day was different. On this day, he sat up in a chair for one of the first times ever. Although he can’t speak, the expression on his face and the light in his eyes seemed to clearly shout: “Hello world, here I am!”

This day took place in spring 2015 when Holt and the SPOON Foundation did a Safe Assessment of Feeding Environments (SAFE) training at Ajay’s care center as part of Holt’s Orphan Nutrition Program (ONP). During the SAFE training, orphanage caregivers are taught about safe feeding positions and methods for children depending upon the child’s age and special need. To demonstrate proper feeding positions, the trainers shined a spotlight on Ajay.

Like many other children with cerebral palsy or other special needs who are living in orphanages, Ajay had always been fed while lying down because his caregivers simply did not know that there was another way. They didn’t have the resources or training to help him sit up. And they didn’t know how to engage with him — to find ways to communicate with this unique and beautiful individual.

Aloura DiGiallonardo, Holt’s nutrition initiatives coordinator, was there to see the joyous moment when Ajay first sat up. Once he was stabilized in a chair, trainers fed him, demonstrating for the caregivers the correct way to do so. “He’s very slow and very messy and he takes a lot of convincing [when he eats],” Aloura says. “But for the first time, he wasn’t simply just tolerating his meal. He was participating in it.”

Aloura said that being fed in an upright position helped Ajay to see the world in an entirely different and better way. She said he laughed as he was being fed, absolutely thrilled with the attention he was receiving.

After the feeding, there was also a moment that deeply moved Ajay’s caregivers. Beth Williamson, SPOON’s occupational therapist, pulled out her phone and showed how Ajay could track the screen’s changes with his eyes. The caregivers immediately started to cry — it was the first time that they realized Ajay’s abilities, and that he, just like all other children, needed interaction and love.

“They just didn’t know,” says Aloura. “And they didn’t know how to do the things to make his response possible.”

Because of the ONP training, Ajay’s nutritional needs, body and spirit are now cared for in an entirely different way.

Megan Herriott | Staff Writer

*Name changed

Overcoming Malnutrition

BSSK-Nutrition-480x720During a visit to India with the SPOON Foundation, Holt’s former director of strategic initiatives, Jennifer Goette, got to hear numerous stories about children whose lives have been saved from nutritional intervention. Below, they describe one little boy named Rajeesh*, who was an especially tough case.

Rajeesh* is a staff favorite at his school in Bangalore, India. A 4-year-old charmer with deep brown eyes that gleam with an impish twinkle, Rajeesh bounces around from one activity to the next and often offers to help his teachers in class.

Rajeesh was 2 years old when he was found abandoned and referred the care center.  Rajeesh’s initial medical examination diagnosed him as having severe anemia and moderate cognitive delays. At the time, Rajeesh was not able to speak and could not sit up without assistance. He had a protruding stomach, often a sign of protein deficiency.

This little guy was immediately given a blood transfusion for anemia and started on iron, zinc and calcium supplements.  With a balanced diet and regular monitoring of his anemia, it took more than one year in care before the staff noticed significant improvements in his energy and his iron tests reached normal levels. A few months before his third birthday, Rajeesh was transferred to Bangalore, where he now lives with a loving foster family and has access to speech therapy twice a week.  Although Rajeesh continues to struggle with concentration and has some difficulty speaking, signs of the irreversible damage caused by early malnutrition, he has shown vast improvements in his energy level and overall health.

I [Jennifer] meet Rajeesh when he comes to the care center for informal school. He is quite the character, teasing the other children while bouncing around from one activity to the next. His deep brown eyes have an impish twinkle.  He knows how to charm the caregivers — you can tell he is a staff favorite. As the mid-morning snack is passed around, he is quite the helper, passing out orange wedges and collecting plates when snack time is finished. As the other children wash their hands and return to classes downstairs, Rajeesh is the last child remaining. We giggle as we watch him take a cup out of the cupboard, help himself to a drink of water, and then place the unwashed cup back in the cupboard. He flashes a big smile and skips off. One of the cooks shakes her head and smiles as she retrieves the cup and washes it. What a cheeky kid!

At the time, Rajeesh was matched with an adoptive family and has since come home to his family in the United States. He is one of the lucky ones — a child who has survived and thrived in spite of the difficult circumstances of his early life. While we may not be able to counter all of the ill effects of malnutrition in children coming into care, we want to do whatever we can to give children the best start in life. Rajeesh, and other children coming into care, deserve the very best treatment we can offer.

Jennifer Goette | Holt’s former director of strategic initiatives

*Names changed

Supported Feeding

image4While doing a SAFE feeding training in China, Holt and the SPOON Foundation helped orphanage staff practice feeding techniques on a little girl named Ru*.

Ru has cerebral palsy and is about 9 years old. Trainers and caregivers huddled around her as she let them practice safe feeding methods on her. To keep her body supported in a safe feeding position, participants stuffed pillows and towels around her body and head, during which she remained incredibly tolerant — and even liked it!

“What I like best about the feeding portion of this training,” says Aloura, “is how it gives caregivers the technical expertise to engage and interact with these children who are otherwise difficult to engage with if you haven’t had prior training or experience.”

Aloura laughs as she describes how Ru’s face completely changed as soon as she was raised up to a sitting position. “Her face was so funny! You could tell that there was a sage little soul in there,” Aloura says. “She just had a little smile and was happily looking around — it was so sweet. She was just so happy the whole time because of the attention she was getting.”

During this training, Ru acted as a model to help her caregivers practice SAFE feeding. But she was also there as a representative of all of the other children in her care center who will now grow healthy and strong as they are fed properly with the nutrients they need to thrive.

*Name changed

Daycare Gives Saleem the Nutrition He Needs

DSC04350[1]

When Holt International’s Child Nutrition Program did a training at Vathsalya Charitable Trust (VCT), one of Holt’s longest-standing partner agencies in India, *Saleem’s life and health were dramatically changed for the better.

Saleem was 2-and-a-half years old in 2014 when he first came through the doors of Vathsalya Charitable Trust (VCT), one of Holt’s legacy partners in Bangalore, India that focuses on family strengthening. Saleem has special needs due to seizures that he experienced shortly after birth. The asphyxia during the seizures caused him to be visually impaired and to have cerebral palsey. Saleem belongs to a middle-class family and is his parents’ firstborn child. His father works for a software firm and his mother as a consultant at a slimming center. They were devastated and sad when they learned that their child had these challenges and did everything that they possibly could to help him. They spent hundreds of thousands of rupees and visited and consulted with many doctors with the hope that Saleem would be alright. But this was all in vain. The young couple wondered how they would juggle looking after Saleem with managing their careers. That’s when they found out about VCT’s daycare program. They were more than happy and relieved to find a daycare for their little boy.

When he was first admitted, Saleem was very cranky and did not like being carried. He cringed and cried when anyone stroked his face and his body was stiff and he would not open his mouth during feeding. But during this time, the staff at VCT received training on nutrition and feeding practices from Holt and the SPOON Foundation. Beth, SPOON’s occupational therapist, instantly fell in love with Saleem and wanted to do all she could to help him. She instructed the caregivers about sitting Saleem up in a highchair and helping him get used to being fed in a sitting position. Beth also demonstrated and taught the caregivers how to massage his face and the insides of his mouth in preparation for feeding.

When Saleem was first strapped in and made to sit on a chair, he definitely didn’t like it and he cried when they tried to massage his face and mouth — gritting his teeth and refusing to open his mouth. But this was all because sitting up and being fed differently was an entirely new process for him and it would take some getting used to. It took some time for Saleem, but eventually he began to cooperate.

Throughout the process of working with Saleem and his family, we learned that at home his mother would add a lot of sugar to his food so he would eat. We had to educate the mother that it was a bad idea to add sugar as it would lead to a lot of other problems. In the beginning, he would gag all the food out as he did not like the bland food. But as the days passed, he got accustomed to the food that was less sugary and more nutritious.

It has been over a year since Saleem first came to VCT and started a life of better nutrition and feeding — and there have been tremendous changes in him! Now he loves sitting in his chair, opens his mouth when he is fed, doesn’t gag and eats well. He loves it when people comfort him and stroke his face. He is able to recognize voices and responds when spoken to with a smile or gurgle of glee. He receives occupational and physical therapy to help relax his muscles and make him more flexible and special educators are teaching him to be more aware of his surroundings and recognize different sounds. He loves music and enjoys listening to songs and rhymes. He is also very attached to his caregiver and enjoys being with her. Saleem is thriving physically and emotionally as he receives the care he needs to be healthy.

Joyce Ranjan | VCT’s Educational Coordinator

Want to help other children around the world like Saleem? Give to Holt International’s Child Nutrition Program.

* Name changed

Blessed With a Boy

The Jackson family was excited to add another little girl to their family. But about halfway through the adoption process, they decided to be open to a boy. Now, they are absolutely in love with their son, Luke, and the wonderful new adventure he is to their family. 

One-and-a-half-year-old Luke had been home for just a few weeks when he fell while playing outside. His legs couldn’t keep up with his toddling gait and before long he was on the ground with a bloody knee.

“I was ready for the drama!” says his mother, Lisa Jackson, recounting the moment.

So she brought him inside and began cleaning him up. Lisa and her husband, Tim, have three older biological daughters, so they knew the drill. While it was just a scraped knee, nothing serious, Lisa doted on him with the loving care and attention that she knew would make him feel better and stop the tears.

“But he kept crying and crying,” she says. Maybe the fall had scared him more than she realized.

But the next word out of Luke’s mouth cleared up any confusion: “Outside!” he sobbed.

He was “over” his bloody knee and falling down — this boy wanted to get back outside to play!

Continue reading “Blessed With a Boy”